Peak Testosterone Forum

General Category => Testosterone, Hormones and General Men's Health => Topic started by: joeviv10 on August 05, 2018, 06:50:14 am

Title: please help!
Post by: joeviv10 on August 05, 2018, 06:50:14 am
In May, June 2016 I started a hardcore cut where I went from 165 lbs to 140lbs at 5'9''. Im 23. While doing this cut within the first month I noticed symptoms but thought they would dissapear as soon as a I gained the weight back. The symptoms include:

-Complete loss of libido, morning spontaneous erections
-Anorgasmia
-Dry , Tired Eyes
-Lack of body odor/ejaculate smell,  sweat from armpits, genital area
-My Genitals feel numb as well. Some days I have woke up with a 60% erection but I did not know until I put my hand in my pants.
-Dribbling after urinating. Its like stress incontinence. Pain on the right side what I would call the "vas deferens" feeling or urine in the urethra,tip of penis. Cold feeling in testicles, scrotum.
-Legs feel really tired, lack of blood flow is best way to describe it.
- I feel like I lost alot of sensation in my body, nipples dont tickle anymore, as well as genital numbness.

I have been to 2 urologists (ultrasound of testicles, prostate) nothing found. 2 Neuros (mri of lumbar spine, minor herniation, and spina bifda l5-s1. As well as leg emg that showed a big loss of moto neurons in the left and right foot. Neurologist reccomended I see a neurosurgeon, and he said he doesnt think my problems are from my back and reccomended I finished with the Endo then come back to him. Endo said at first my hormones were low for my age but to come back in 1 month with new results as well as total t. I returned and he said my hormones were normal and that I should see a sex therapist?

Does anyone have any idea what this could be?
Title: Re: please help!
Post by: Pennywise09 on August 05, 2018, 06:54:48 am
What’s “normal” hormone levels according to the doc? What hormone test did he perform? Free and total test? E2? Sbhg? If you have the the blood work results please post so we can help out.
Title: Re: please help!
Post by: joeviv10 on August 05, 2018, 07:05:51 am
SHBG 22.2nmol/l (16.5-55.9)
FSH 3.7 (1.5-12.4)
LH 5.0 (1.7-8.6)
Estradiol 13 (11.3-43.2)
progesteron 0.12 (0-0.13)
Test Total 4.61 (2.49-8.33)
Free Test 2.56% (1.53-2.88)
Cortisol 748 (171-536)        Cortisol has stablilized
TSH 2.5 (0.35-.4.94)
Prolactin 301 (73-407)
Title: Re: please help!
Post by: Cataceous on August 05, 2018, 07:23:25 am
Many years ago I experimented with pretty severe calorie restriction for a couple months and did experience a loss of sexual function. But it all came back after a few weeks of normal eating.

If total testosterone is in ng/mL then that translates to 461 ng/dL. Combined with lower SHBG you get calculated free testosterone of about 12 ng/dL, which usually is adequate, but is low for your age. If you had lower values previously then low testosterone probably is contributing to your problems. Your prolactin is about 14 ng/mL, which is a little higher than we normally see, but I'm not sure if it's enough to be contributing to your symptoms. A more aggressive doctor might want an MRI of your pituitary.

There are a few additional tests mentioned here (http://www.peaktestosterone.com/Testosterone_Tests.aspx) that you might consider, including vitamin D status.

If no underlying issues are discovered then I'd think a testosterone-boosting treatment might be appropriate, at least short-term to help determine if low T is a reason for your symptoms.
Title: Re: please help!
Post by: Cataceous on August 05, 2018, 07:31:59 am
I should add that estradiol of 13 pg/mL is definitely low enough to cause a variety of problems. If this was an immunoassay test then it's possible the actual number is lower still.
Title: Re: please help!
Post by: Pennywise09 on August 05, 2018, 07:44:33 am
Could be adrenal Fatigue. Usually a good diet, staying hydrated and going on walks of light to moderate exercise will help out. Might want to check your blood count for anemia.
Title: Re: please help!
Post by: joeviv10 on August 05, 2018, 08:00:48 am
Is it normal for a 23 year old to not have an erection for 2 years, ed, 0 libido and all kinds of symptoms he did not have before. Doctor said this could not be caused by diet because I have stopped the diet 18 months ago. Will be getting my DHT checked tommorow. Hopefully brain Mri soon too. New to the forum and so far have found it very helpful with the active members and fast responses! Good to feel like im not alone in this :-\
Title: Re: please help!
Post by: shattered dreams on August 05, 2018, 08:38:37 am
I did the exact same thing as you, and it has been 5 months now and I have not come back.  I am 43, and you are only 23, so I was going to say you will most likely come back due to being younger.  However, I just read it has been 18 months since you dieted.  At that point, you are not going to come back.  Some are going to recommend clomid, but I advise against that.  Sad to say, it sounds like trt is going to be the way to go.
Title: Re: please help!
Post by: joeviv10 on August 05, 2018, 08:46:13 am
well I live in europe  and my testosterone has been varying from 450-600ng/dl. The reason I don't think its Testosterone is because the way doctors are treating me like im some kind of maniac who is making all this up. Surely they would have come across a bunch of other males whose tesosterone is in the 450-600ng/dl range and complaining about having ed and no libido?!
Title: Re: please help!
Post by: Mindscape on August 05, 2018, 11:17:24 am
well I live in europe  and my testosterone has been varying from 450-600ng/dl. The reason I don't think its Testosterone is because the way doctors are treating me like im some kind of maniac who is making all this up. Surely they would have come across a bunch of other males whose tesosterone is in the 450-600ng/dl range and complaining about having ed and no libido?!

Androgen knowledge in other countries is sorely lacking, there are few doctors who can even properly diagnose a testosterone deficiency because they are blinded by these reference ranges who have unhealthy people captured within them. TSH looks problematic, doctors won't think so because they are blinded by reference ranges which ends all decisions and symptoms must be in your head according to doctors. Low SHBG men need more Free T as we excrete/metabolize it faster.

No one inside the NHS has any clue about hormones, going private is your only chance.   
Title: Re: please help!
Post by: joeviv10 on August 05, 2018, 11:38:05 am
Im actually in Croatia, most of my symptoms I found are from either Low T, but then when I read about Low e2 BINGO, Tired eyes, lack of sensitivty (numbness) and anorgasmia. It has been 2 years with no improvment. I also read people who took anti depressants or Finasteride have similar symptoms, I have taken neither accept protein powder/bars.

How would one go about raising E2 without going on TRT. Should I just try drinking some Soy milk ?! LOL seriously
Title: Re: please help!
Post by: Cataceous on August 05, 2018, 12:03:54 pm
Low doses of Clomid can raise both testosterone and estradiol.
Title: Re: please help!
Post by: joeviv10 on August 05, 2018, 12:14:39 pm
do I have to get that prescribed, or will I have an easy time getting that on the black market?
Title: Re: please help!
Post by: anton3196 on August 05, 2018, 03:19:55 pm
In May, June 2016 I started a hardcore cut where I went from 165 lbs to 140lbs at 5'9''. Im 23. While doing this cut within the first month I noticed symptoms but thought they would dissapear as soon as a I gained the weight back. The symptoms include:

-Complete loss of libido, morning spontaneous erections
-Anorgasmia
-Dry , Tired Eyes
-Lack of body odor/ejaculate smell,  sweat from armpits, genital area
-My Genitals feel numb as well. Some days I have woke up with a 60% erection but I did not know until I put my hand in my pants.
-Dribbling after urinating. Its like stress incontinence. Pain on the right side what I would call the "vas deferens" feeling or urine in the urethra,tip of penis. Cold feeling in testicles, scrotum.
-Legs feel really tired, lack of blood flow is best way to describe it.
- I feel like I lost alot of sensation in my body, nipples dont tickle anymore, as well as genital numbness.

I have been to 2 urologists (ultrasound of testicles, prostate) nothing found. 2 Neuros (mri of lumbar spine, minor herniation, and spina bifda l5-s1. As well as leg emg that showed a big loss of moto neurons in the left and right foot. Neurologist reccomended I see a neurosurgeon, and he said he doesnt think my problems are from my back and reccomended I finished with the Endo then come back to him. Endo said at first my hormones were low for my age but to come back in 1 month with new results as well as total t. I returned and he said my hormones were normal and that I should see a sex therapist?

Does anyone have any idea what this could be?
did you take anything during cut? or was it completely natural? any supplements/drugs/anabolic steroids?
Title: Re: please help!
Post by: joeviv10 on August 05, 2018, 03:32:38 pm
Never took any SSRI antidepressent, drug, or anything in my life, accept for Protein powder/bars and hydrocortisone cream for a fungal rash all over my but cheeks.

I think this is an e2 issue, and will be buying soy milk tommorow drinking it for maybe 2-3 days a week and seeing how I feel.
https://www.youtube.com/watch?v=pxxN2Y8M6MI (https://www.youtube.com/watch?v=pxxN2Y8M6MI)
Title: Re: please help!
Post by: Cataceous on August 05, 2018, 05:28:45 pm
do I have to get that prescribed, or will I have an easy time getting that on the black market?

Of course it's best to have clomiphene prescribed by a knowledgeable doctor who will monitor your treatment. I don't know its legal status in Croatia. It's readily obtained in the US as a nominal research chemical, with sellers' disclaimers saying it's not intended for human use.
Title: Re: please help!
Post by: shattered dreams on August 05, 2018, 06:09:34 pm
do I have to get that prescribed, or will I have an easy time getting that on the black market?

As I said, I don't recommend that, but I will tell you how to get it if you want to try that route.  Simply type "buy clomid" into google, and you will find multiple pharmacies that will ship it without a prescription.  If you do try it, buy the smallest tablets you can find.
Title: Re: please help!
Post by: joeviv10 on August 06, 2018, 07:54:23 am
has this world gone mad!? Im a 23 year old male who has no libido and numb genitals,lethargy etc... and I can't seem to find help.
I feel like I have to commit some kind of crime to get some kind of treatment....
Title: Re: please help!
Post by: joeviv10 on August 06, 2018, 07:56:12 am
ps. Neurosurgeon who is one of the best in this part of Europe recommended I get an Mri of the pituitary. As well as the first endo . I dont understand why I need an MRI of pituitary if they are saying my Testosterone level of 450-550 is perfectly fine, and that I should maybe see a sex therapist? Do you guys think its worth paying about 250$ US for an MRI??
Title: Re: please help!
Post by: Pennywise09 on August 06, 2018, 10:16:00 am
Do you have any back pain? Sounds like there could be some nerve damage. Maybe an mri or whole body scan might be a good option if you are really concerned. Either that or could be anxiety. The mind is a powerful thing, when the chemicals are unbalanced it can play some nasty tricks physically and mentally.
Title: Re: please help!
Post by: joeviv10 on August 06, 2018, 11:38:19 am
no pack pain.

MRI on Lumbar region was shown to Neurogsurgeon he reported the following: In l1-l2 minor herniation iv disc dorsomedial. In l5-s1 spondilothesis with spina bifida and narrowing of neurol foramen l5 left root. No significant compression of dural sac and roots l5-s1.

Emg  of lower extremities shows neurogenic lesion s1s2 left , and l5s1s2 right.  Low testosterone.

Finish Endocrinologist evaluation as well as MRI of brain and selar region. Control after.
Title: Re: please help!
Post by: joeviv10 on August 06, 2018, 12:01:14 pm
Primary doctor said that my testicle does feel swollen and sent me for ultrasound and gave me anti biotics, Endo said hormones are low for my age , Neurologist 1 sent me for leg emg and said to go see a neurosurgeon. Had to wait 4 months to see neurosurgeon so I cancelled and went privately. Private neurosurgeon didnt sound concerned and said to finish with Endo. Endo said hormones are low for my age and to come back with a month. See another neurologist who tells me that the nerves in my back where I have a herniation are the nerves that give sense to the genital region, but tells me to go on the advice of the neurosurgeon and do endo first as well as MRI of brain. WTF!!! Im all out of cash, I quit my job, All of the doctors have had something to say about my issues (neuro , and endo first said hormones are low) and in the end I need a Sex Therapist!?!?!
Title: Re: please help!
Post by: joeviv10 on August 06, 2018, 12:40:42 pm
Cholesterol 275   (125-200)
LDL 190              (Less than 100)
HDL 1.86               Greater than 1
Title: Re: please help!
Post by: joeviv10 on August 07, 2018, 04:11:01 am
will be getting DHT checked tommorow...even though I never took any kind of finasteride,propecia, etc in my life. Do you guys think its worth getting a pituitary mri
Title: Re: please help!
Post by: jacob2001 on August 07, 2018, 06:24:49 am
joe, this is a long shot and i am no doctor, but i wonder if your extreme cutting resulted in extreme deficiencies in vital minerals and vitamins, which could cause a breakdown in your nervous functions such as feeling, the libido and endocrine system.

if you have not already done so then attempt to rectify this by taking a full spectrum of minerals and vitamins as supplements for a few weeks. take highish doses but obviously not high enough to be toxic or to overload the liver. google everything, check dosage ranges.

this means the lot....zinc, copper, boron, selenium, chromium....vitamin d, all vitamin b’s...calcium...magnesium....etc etc...the a to z. take at the right time of the day and not all at once, do some reading about timing, whether on an empty stomach or with meals etc.

this might seem too obvious and a long time ago i would have assumed doctors would have already suggested it, but over the years i have lost a lot of confidence in the medical profession and they may not have done so.

Title: Re: please help!
Post by: joeviv10 on August 07, 2018, 08:53:54 am
getting DHT tested tommorow. Will start to drink a few glasses of soy milk for 2 to 3 days seeing if it is an estrogen issue. I have been supplementing with ZMAs with no benefit and read about supplementing strictly with ZINC 80-100mg a day.

I have never taken finasteride /propecia or anti deppressents in my life.
Title: Re: please help!
Post by: joeviv10 on August 07, 2018, 10:27:58 am
one again, do you guys think its worth getting a MRI of brain /pituitary?
Title: Re: please help!
Post by: Cataceous on August 07, 2018, 10:35:26 am
one again, do you guys think its worth getting a MRI of brain /pituitary?

In the end you're the one who must answer that. Most of these tests come back negative, but if there is something there then you want to know it. So weigh your cost against the small chance of a treatable abnormality.
Title: Re: please help!
Post by: joeviv10 on August 07, 2018, 12:56:24 pm
All of my symptoms are that of someone who has been on finasteride/propecia. I even asked Dr. John Crisler what can cause genital numbness. His response was DHT. Once again I have never taken any drugs like that or any drugs in general in my life. This all began in the summer of 2016 when I went on a calorie deficit and hardcore training regimen.
Title: Re: please help!
Post by: Pennywise09 on August 07, 2018, 06:24:28 pm
All of my symptoms are that of someone who has been on finasteride/propecia. I even asked Dr. John Crisler what can cause genital numbness. His response was DHT. Once again I have never taken any drugs like that or any drugs in general in my life. This all began in the summer of 2016 when I went on a calorie deficit and hardcore training regimen.
What was your hardcore training regimen?
Title: Re: please help!
Post by: joeviv10 on August 07, 2018, 10:07:43 pm
I was working construction eating 1500calories mostly fruits salad oatmeal black coffee. Everyday on gym treadmill I made sure i burnt atleast 800-1000 calories. Also was doing sprints with a friend everyday almost.
Title: Re: please help!
Post by: joeviv10 on August 11, 2018, 03:13:42 am
If I do some exercise I sweat like normal, but my armpits and crotch are COMPLETELY DRY. Gentials still feel numb/rubbery. No history of SSRIs or Finasteride/Accutane/Propecia. "Apocrine glands respond to hormone changes and start to work during puberty" No libido, no erections in 2 years, low semen volume, no feeling in orgasm. Any one know WHAT THE FUCK is going on?!
Title: Re: please help!
Post by: shattered dreams on August 11, 2018, 04:46:20 am
You're going to have to come to terms that you have damaged your system, and you might never get it back.  As I said before, I did the same thing as you, and have the same exact symptoms you do.  I have a total testosterone of 660, but I have all the symptoms of very low testosterone.  I have not had an erection at all ever since. I know I will never be able to have sex again. I never had any of these problems before the extreme diet and exercise.  I beat myself up for it and have given up on ever getting better.  Considering how long ago you did this, and all the doctors you have seen are not helping, you are most likely going to have to do the same. I feel very bad for you, especially how young you are, but this is the truth. :(
Title: Re: please help!
Post by: joeviv10 on August 12, 2018, 12:22:37 pm
shattereddreams

Relax.. I have been going thru this for 2 years but haven't given up yet no matter how depressing it is. What is your E2? It seems that where I post about this people tell me about my e2 being low and I have all the symptoms.
Title: Re: please help!
Post by: shattered dreams on August 12, 2018, 07:20:27 pm
I do not know what my e2 is as they did not test for it.  I got tested for total test, free test and bio test and was on the very bottom levels of normal, with the exception of total test.  I keep reading free test below 10 gives symptoms, and mine is 6.6.  Unfortunately, I live in poverty, so I do not even have the money to eat properly.  I know I will never get better given my circumstances.  It has been 5 months since I did the extreme diet and exercise.
Title: Re: please help!
Post by: joeviv10 on August 13, 2018, 05:28:21 am
bump
Title: Re: please help!
Post by: joeviv10 on August 14, 2018, 07:21:28 am
https://forums.t-nation.com/t/help-with-bloodwork-low-testosterone-or/245193/41

Just got a reply from my doctor from Canada back. He said that my blood looks fine .

" I suggest you do an neuroconductive test to see if you have peripheral neuropathy. Your low libido could have psychoemotional cause"
Title: Re: please help!
Post by: joeviv10 on August 20, 2018, 04:49:53 am
DHT results in

Dihydrotestosterone 220pg/ml (300-850)

Where do I go from here?! I dont know where to turn anymore?
Title: Re: please help!
Post by: Cataceous on August 20, 2018, 05:08:16 am
In your shoes I would talk with a doctor about a trial with Clomid. With some younger guys a short period on the drug is enough normalize hormone production.
Title: Re: please help!
Post by: joeviv10 on August 20, 2018, 05:11:58 am
Im really worried that I wont get help. The doctors here were very hesitsant to even check my Testosterone level even though my long list of symptoms. After I begged her to check my t levels she said Free test was completely irrelevant.....
Title: Re: please help!
Post by: joeviv10 on August 20, 2018, 12:13:23 pm
Bump
Title: Re: please help!
Post by: Cataceous on August 20, 2018, 01:01:54 pm
Not sure what you're looking for here. If you're able to come to the US then we can direct you to some excellent doctors. You can start a new thread if you want to ask about doctors in specific other countries. If you think you have no option other than self-treatment then be sure to read as much as you can about lab tests, dosing, etc.
Title: Re: please help!
Post by: joeviv10 on August 20, 2018, 01:40:05 pm
Has anyone ever heard of someone getting LOW DHT from dieting and training. No finasteride/propecia/accutane?
Title: Re: please help!
Post by: Cataceous on August 20, 2018, 02:02:08 pm
I think you probably need a testosterone boost too, but here are some ideas for raising DHT: http://www.peaktestosterone.com/How_Increase_DHT.aspx
Title: Re: please help!
Post by: joeviv10 on August 21, 2018, 05:27:03 am
when you say testosterone boost what do you mean? Do you mean TRT or do you mean taking stuff like zinc/ tribulus, lifting weights , bulking etc.?
Title: Re: please help!
Post by: Cataceous on August 21, 2018, 07:32:57 am
I mean your testosterone is low enough that it could be contributing to your symptoms. At your age TRT should be pretty much a last resort. If natural/dietary methods would work then they should be preferred. Otherwise Clomid could be useful to tell you if you're going in the right direction.
Title: Re: please help!
Post by: QQ on August 21, 2018, 10:36:27 pm
Just trying to brainstorm here with you.  I may have misunderstood your previous posts, but didn't you say you had bulging discs and nerve issues in your lower spine?  Is there any way nerve problems are causing some or all of your numbness/ED problems, and then libido going to zero as a result of the numbness/ED?  Obviously you also have some mediocre lab results, but is it possible that at least some of your problems could be solved by dealing with your spine problems?
Title: Re: please help!
Post by: joeviv10 on August 22, 2018, 03:19:40 am
QQ, Honestly I dont know anymore. When all this started I was 100% sure it was hormonal. This is because it happened during a starvation diet and overtraining regimen. I just noticed I stopped getting erections and my libido was gone. Doctor suggested mri of lumbar spine. Neurologist said that the spot that I have back problems gives sensation to the genital region. He reccomended I see a neurosurgeon. Neurosurgeon basically blew it off and said he has a hard time imagining that my back problems are causing numbness and no libido. He recommended I  finish with the endo and come back to him with a brain mri as well. All of my symptoms are similar to those who have taken finasteride/accutane/propecia/ssris.
Title: Re: please help!
Post by: shattered dreams on August 22, 2018, 03:45:02 am
As others have said, your options are to either go on clomid or trt.  :)
Title: Re: please help!
Post by: QQ on August 22, 2018, 09:31:24 am
First off, you have other options than just clomid or TRT.  Those are certainly options for you, but they are not your only ones.  I get that shattered dreams is trying to help, but it would be helpful if he dialed down the pessimism and fatalism a little bit.

Second, it seems to me that you are very focused on post finasteride syndrome.  You certainly have a bunch of the sexual symptoms of post finasteride syndrome, but you haven't mentioned many of the other symptoms:

Gynecomastia
Fatigue
Muscle atrophy, weakness
Muscle twitching
Decreased oil and sebum production
Chronically dry, thinning of skin
Melasma (brownish macules and patches that typically affect sun-exposed areas on the face)
Tinnitus (ringing in the ears)
increased fat deposition, obesity and elevated body mass index
decrease in body temperature
Reduced HDL cholesterol, raised fasting glucose and triglycerides

People with post finasteride syndrome certainly have low DHT.  You also have low DHT.  But you have no history of taking anything that would cause post finasteride syndrome, and you are missing a lot of the symptoms of post finasteride syndrome.  The fact that you have low DHT does not mean that you have post finasteride syndrome.

Also, the rest of your lab results look inconclusive to me - there's no pattern that jumps out as obvious.  Your T is not amazing, but its not terrible either.  Going on TRT or clomid at this moment seems like it would be a shot in the dark.  Better to be patient and not jump the gun on those things.

--------------------

Let's take a step back here for a minute.  On the downside:  You have a bunch of shitty symptoms.  You don't have one diagnosis to explain all your symptoms.  You have a bunch of docs who are giving you the runaround.  These things all suck.

On the upside:  You are young.  You have time on your side, and young bodies can overcome things that old bodies can't.  You DO have a concrete diagnosis that could explain SOME of your symptoms.

It seems to me that you can choose to focus on the downside if you want and get fatalistic and give up.  Or, you can choose to focus on the upside, start treating based on the diagnosis that you DO have, and don't let some stupid docs push you around.

Even if it takes you years to sort everything out, you have a lot of time.  Imagine yourself at age 60 looking back and saying "well, I lost 3 or 4 years of sexual function in my 20s, but thank god I kept at it and got back to health by 25 and now I've had 35 years of great health and great sex."  You should mentally prepare yourself that you are not going to feel normal right away.  There isn't any sort of magic cure that's going to make you feel great in two weeks.  Accept that this is going to be a slow process, your focus should be on feeling a little bit better next month than you do this month, not on being 100% fixed next month.  If you string together enough months where you feel better than the previous month, then you'll get there in the end.

Personally I would go back to the neurologist and tell him "I finished with the endo, now treat me for my nerve problems or I will find a neurologist who will."  Don't let him push you around.  He knows more about health in general, but its YOUR health, and you know more about YOUR health than any doc does.

Fix the problem that is currently in front of you and then move on to the next one.  This is going to be a multistep process.  You should assume that you have more than one issue, and you will need to treat them in sequential order.  Like one member here Sam had problems with thyroid, adrenals, and also low T.  He first worked on thyroid and adrenals and had to try lots of things to get those working better, and only then could he treat low T with success.  You're going to probably need to do something similar.
Title: Re: please help!
Post by: QQ on August 22, 2018, 09:50:31 am
Also, just as a quick note - you have really emphasized your starvation diet and intense working out.  I know you stopped that quite a while back, but did you increase your eating back to the levels before you went on a cut?  If you essentially told your body "we live in a famine", then your body may have altered all sorts of things in your metabolism, tanking thyroid and sex hormones and increasing cortisol and stress hormones.  If you never returned to normal eating patterns, then you essentially never told your body that the famine was over.  You may need to actually work at eating enough again, even if your hunger levels are telling you that you don't need to eat.
Title: Re: please help!
Post by: joeviv10 on August 22, 2018, 03:16:48 pm
Hi QQ,

Appreciate the post, it did lift my spirits a bit in this nightmare im going through! With regards to the symptoms of PFS.

Gynecomastia                        I do not have
Fatigue                                   Legs feel very tired, and im just uninterested in stuff because of my no libido/ed
Muscle atrophy, weakness                In the legs
Muscle twitching
Decreased oil and sebum production        I do not have to wash my hair anymore/ no oil on scalp
Chronically dry, thinning of skin                 Scalp feels very dry, as well as armpits.
Melasma (brownish macules and patches that typically affect sun-exposed areas on the face)          No
Tinnitus (ringing in the ears)                                   Have had this my whole life when I put my ear on pillow
increased fat deposition, obesity and elevated body mass index                             Yes centralized body fat
decrease in body temperature                                                                           
Reduced HDL cholesterol, raised fasting glucose and triglycerides                 High HDL, low fasting glucose

The only time I went to the doctor in my life was when I had something growing on my scalp. A very large zit, that did not go away and would bleed for 16 months. I was certain it was skin cancer, and was scared to see my doctor. He told me it was a cyst and it would go away on its own. I was immediately at ease. I have been told by doctors that im fine, its probably just in my head, but I keep going back to them, I keep getting new blood tests, now finally I have come across the DHT test and it certainly is low!

I have started eating like before, and have not noticed a difference. I feel like something is clogging me in my right "vas deferens" ...Penis has no sensitivity to it. Low sperm volume, I dont feel ejaculation anymore, I dribble piss, no morning/spontaenous erections for 2 years now. The doctors are basically throwing the Psychology/depression bs allthough I know 120% something is physically wrong otherwise I wouldn't have this discomfort in my pelvis on the right side only!
Title: Re: please help!
Post by: shattered dreams on August 22, 2018, 08:40:11 pm
First off, you have other options than just clomid or TRT.  Those are certainly options for you, but they are not your only ones.  I get that shattered dreams is trying to help, but it would be helpful if he dialed down the pessimism and fatalism a little bit.

Sorry about that QQ.  I am also going through a similar crisis as Joe, and it brings out the worst in me.  You can see the desperation in both of our posts.  I will stay out of this thread from now on, and try to work on myself without throwing in the towel.
Title: Re: please help!
Post by: QQ on August 23, 2018, 12:29:52 am
Sorry about that QQ.  I am also going through a similar crisis as Joe, and it brings out the worst in me.  You can see the desperation in both of our posts.  I will stay out of this thread from now on, and try to work on myself without throwing in the towel.

Yeah man, I definitely can see the desperation.  You should look up positive self-talk - I think it could really help you.  When you say things like "I know I will never be able to have sex again," you are not helping yourself.  Plus that statement is objectively NOT TRUE.  You cannot predict the future, and you are not a psychic, so you really don't know.

It's been five months for you.  That may seem like forever, but in actuality it's about .005 of your life.  Shit may be bad right now and it may seem really dark, but the human body is really impressive at recovering given enough time and a little help here and there.  Right now the easiest thing, and the most impactful thing you can work on is your outlook on your situation.  Optimism and resilience are learned skills you can practice and get better at.
Title: Re: please help!
Post by: QQ on August 23, 2018, 12:59:46 am
Appreciate the post, it did lift my spirits a bit in this nightmare im going through!

Happy to help!  :-D

I have come across the DHT test and it certainly is low!

Curiously, PFS guys often have normal levels of DHT and yet still have symptoms.

Yes, your symptoms have overlap with PFS, but its not a perfect match.  The biggest reasons I'm suggesting you drop the PFS track for now are:

1) You have no history of taking 5aR inhibitors (propecia, finasteride, etc).  That is the one thing all these guys who have PFS have in common - they took or were exposed to something that inhibits 5aR.  You may have a lot of the same symptoms as them, but those same symptoms are also seen in many other disorders (ie, low T combined with thyroid/adrenal issues, or many other things) that don't require taking a 5aR to get.  Occams razor says you probably don't have PFS since you are missing the only element that all the guys who get PFS have in common.

2) nobody seems to know what PFS really is or even an inkling on how to treat it.  If you go to the propecia recovery forums and read a bit, you'll see that there are guys there who took a 5aR inhibitor for a few months, crashed, stopped the 5aR inhibitor, and now 5+ years later they have fantastic, near perfect lab results across the board, yet still have bad symptoms.  There literally is no known treatment for PFS at this time.

So, you can choose to focus on the similarities you have with PFS guys and decide that you are as hopeless as they are, OR you can choose to focus on the differences you have from PFS and decide that you want to be hopeful and try to exhaust all other avenues of treatment before succumbing to PFS fatalism.

Basically what I'm saying is that there is zero utility in believing you have PFS, so you should stop believing that and start believing something that will have higher utility.

I have started eating like before, and have not noticed a difference. I feel like something is clogging me in my right "vas deferens" ...Penis has no sensitivity to it. Low sperm volume, I dont feel ejaculation anymore, I dribble piss, no morning/spontaenous erections for 2 years now. The doctors are basically throwing the Psychology/depression bs allthough I know 120% something is physically wrong otherwise I wouldn't have this discomfort in my pelvis on the right side only!

Ok, this sounds to me like you have something physically wrong with your nuts.  I don't know that much about varicocele, but this sounds an awful lot like that.  PeakT had varicocele and he wrote up some articles on his experience with it that you can get to from the homepage, or there are a bunch of guys on here who have posted about it as well.  Reduced bloodflow due to a bad varicocele could explain a boatload of your symptoms (maybe all of them?), and would explain a bunch of your lab results.
Title: Re: please help!
Post by: joeviv10 on August 26, 2018, 01:40:46 pm
odd enough, I only have this discomfort on my right side. Right testicle, right epidiymitis/ right vas deferens.... Ultrasound came back clear. :|
Title: Re: please help!
Post by: QQ on August 26, 2018, 11:23:50 pm
Well maybe its not a varicocele?  I have no experience with varicocele, so not sure if you can have one but have it not show up on ultrasound.  Even if its not varicocele, it still sounds to me like a physical problem with a testicle, or straight testicle damage.  Some of the other guys on here who have experience with testicle trauma/varicocele or other ways you can end up with testicle damage would probably have more to say on that front than I do, as its not something I've personally had to deal with (thank goodness).

PFS guys and low thyroid guys and adrenal fatigue guys don't usually have testicle symptoms like you have.  I would keep on this path of investigation until you are sure its not caused by some sort of physical condition/damage to your right testicle.
Title: Re: please help!
Post by: joeviv10 on August 27, 2018, 11:27:16 am
I've visited 2 urologists (ultrasound of testicles etc) all clear. just need to do a urodynamics test. uroflow test was fine.
Neurologist did leg emg shows I have damage in feet as well as spine mri L1-l2 minor herniation, spina bifida l5-s1. Neurosurgeon said to first finish with endo because it seems hormone related. Endo says hormones are low for my age come back with new bloods in a month and I should get TRT. I come back in a month and he tells me my hormones are fine, and I should see a sex therapist. I decide to do more research...I get DHT checked its low at 220 (300-850) I show my doctor and he tells me to go to my endo and get an MRI of the brain...
Title: Re: please help!
Post by: joeviv10 on September 13, 2018, 11:11:04 am
anyone have an idea why I have no body odor, no libido, leaking urine, low semen volume, I dont feel orgasm, tight scrotum, numb genitals, tired dry eyes!?
Title: Re: please help!
Post by: joeviv10 on September 14, 2018, 08:53:15 am
New results are in:

Total T 460
Free T 2.6% (1.5-2.9)
SHBG 19 (18-54)
DHEA-S 12.5 (4.3-12.2) **********
Insulin 10.8 (2.6-24.9)
Fasting Glucose 4.7 (<7,0)
Title: Re: please help!
Post by: joeviv10 on September 26, 2018, 11:31:41 am
Anyone !? Please help. I have this discomfort in my right testicle only 30-40% of the day. After I use the washroom I tend to leak urine. I have 0 Libido. My scrotum is and penis feel numb. I have no feeling when I ejaculate and it just oozes it. My scrotum is also very tight!
Title: Re: please help!
Post by: Cataceous on September 26, 2018, 02:26:55 pm
In terms of hormonal things I would recheck prolactin to see if it's still a little elevated. Also, if you have access to a free estradiol test then that could be worth looking into. Because your SHBG is on the low side it's possible that free estradiol is high enough to cause problems.
Title: Re: please help!
Post by: joeviv10 on September 27, 2018, 05:49:52 am
hm, nobody seems to care about my DHT being 220 RANGE= 300-850...
Title: Re: please help!
Post by: Cataceous on September 27, 2018, 06:11:28 am
There were some suggestions when you first posted that result. But it shouldn't be viewed in isolation. Raising testosterone also raises DHT.