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Messages - donkeykong1234

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1

Here are my test results from like 2 weeks ago.  The test was done early in the morning. Let me know what you guys think. Thanks.

ACTH   62 pg/mL          6 - 50 pg/mL

CORTISOL   17.4 UG/DL   2.9 - 19.4 UG/DL

FREE T4   1.1 NG/DL         0.8 - 1.7 NG/DL

TSH   6.13 UU/ML                 0.40 - 4.60 UU/ML

PROLACTIN   23 NG/ML         2 - 18 NG/ML

TESTOSTERONE, TOTAL   483 ng/dL   250 - 1100 ng/dL

FREE TESTOSTERONE   108.2 pg/mL   35.0 - 155.0 pg/mL

FSH   20.2 MIU/ML        13-70 YEARS: 1-15 MIU/ML

LUTEINIZING HORMONE   5.4 MIU/ML      AGES 21-70: 2.0-6.0 MIU/ML

VITAMIN D, 25-HYDROXY   20 NG/ML   30 - 80 NG/ML

IGF-1   205 ng/mL   53 - 331 ng/mL

Do you guys think the acth hormone is high enough to give me problems?  Can the elevated prolactin still be causing me issues? I know its not super high.  I read an article that says high prolactin leads to obesity.  I still have crap energy.  My libido is not great. I am able to get erections and have intercourse. My sensitivity is not good.  My endo says my testosterone is fine.  I don't think it is for someone my age.  I asked if i should go back on the cabergoline and she said she will decide after my mri.   So yeah thats where i stand.  I mean i don't feel like complete crap which is a plus, but i don't feel 100 percent optimal.   Like my body is being held back.  I'm just wondering which is the right step. i'm taking vitamin d daily.  Should i be taking pills for my thyroid? My dads tsh and my friend checked thiers and it is at 1.7.  Mine is really sluggish compared to theirs.  Is that contributing as well?

Any suggestions will be appreciated. Thanks guys.

Donkey: I was wondering if you had a semen analysis with those numbers, namely the FSH of 20.2 & Prolactin of  23. I imagine those two bloodwork parameters are going to affect fertility the most. However, I do remember you posting your story last year and things seemed to have improved naturally to some extent. Wasn't the Prolactin some number like 150+ back then? Even those 23 is still high you seem to be moving in the right direction.

I had a semen analysis done a while ago.  Had to be more than a year ago.  I put 12 tubes of sperm in storage.  At the time my fsh was at like 14 And my prolactin was At 14 or something.  They barely found any sperm at that time they only found a few. They had to use a special machine to find whatever I had left.  I can only imagine my sperm is probably worst as my fsh is at 20 now.  The urologist at the time told me their was nothing they can do and that my testicles are failing due to the high fsh.

Yes my prolactin was at 167.  I guess it's gotten slightly better.  I'm positive at the time the elevated prolactin had some effect on my mind and behavior as I was behaving in a way which was uncharacteristic of me.  Over time I guess my brain regained control and now I'm thinking like my old self.

But still I'm not happy I have a lot of body fat which I never had before, my stomach is very slow digestion.  My energy is still crap.

So I have to this mri again which I dread and most likely the endo will put me on cabergoline to lower my prolactin.  Then I will get back on some thyroid meds when I call defy.  Have them retest my t levels and do whatever they tell me to do from there.

2

New to the Forum. I'm seeking advice on how best to raise my T. My T is 222 (blood work done around Noon) and  it was 154 (blood work done at 4:00 pm). I'm 33 and 160 pounds.

Prior to my recent discovery of low T, I suffered anxiety, night panic attacks, chronic/severe insomnia, heart palpitations, chronic fatigue, depression, and sinus tachycardia. I also had a past infection of the Epstein Barr Virus. I also had a low DHEA reading back in February.

These symptoms have gone on for seven months. I have less anxiety now, but still suffer insomnia, fatigue, difficulty concentrating, depression, no libido and heart pounding in my chest at night.

I suspect the low T is now contributing to the chronic insomnia. MRI and EEG came back normal. I'm scheduled for a sleep study in two weeks.

My doc wants me to try Androgel, but I'm hesitant. Should I get a second opinion from an Endo or Urologist first?

Thank you for listening.

Contact Defy medical. They will lead you in the right direction. All local docs are unexperienced in testosterone filed. Defy will order the correct lab work and start a plan for you.

How can you possibly say that "All local docs are inexperienced in testosterone field"?

That's an unfair and very reckless statement.

Well genius tell me how often are you going to find a local doc who deals with clients with testosterone issues on a daily basis? Should he go on a wild goose chase like you recommend trying out new doctors daily or should he deal with someone you know experienced in the testosterone field.

3

New to the Forum. I'm seeking advice on how best to raise my T. My T is 222 (blood work done around Noon) and  it was 154 (blood work done at 4:00 pm). I'm 33 and 160 pounds.

Prior to my recent discovery of low T, I suffered anxiety, night panic attacks, chronic/severe insomnia, heart palpitations, chronic fatigue, depression, and sinus tachycardia. I also had a past infection of the Epstein Barr Virus. I also had a low DHEA reading back in February.

These symptoms have gone on for seven months. I have less anxiety now, but still suffer insomnia, fatigue, difficulty concentrating, depression, no libido and heart pounding in my chest at night.

I suspect the low T is now contributing to the chronic insomnia. MRI and EEG came back normal. I'm scheduled for a sleep study in two weeks.

My doc wants me to try Androgel, but I'm hesitant. Should I get a second opinion from an Endo or Urologist first?

Thank you for listening.

Contact Defy medical. They will lead you in the right direction. All local docs are unexperienced in testosterone filed. Defy will order the correct lab work and start a plan for you.

4
Hey Donkey,

Glad to see you back.  Not sure if you remember me, but we messaged a bit during the time that you posted.  Prolactin is a bit high, that should be between 6-8(someone correct me if I am wrong here)

Also - since you have been away, there are a lot of us using defy medical for their treatment.  They really know their stuff and will be able to point you in the right direction a lot quicker than an endo.  Defy wasn't as popular the last time you were posting, but they are really big now.

They should be able to help with the thyroid as well.

Best of luck!
Thanks man.  Yeah i remember all you guys. lol  All of you helped me out alot when i was at my darkest.  Keep me sane and positive.  Yes i will contact with them after i talk to this endo and do my mri.  I will have defy sort out my thyroid as well.


I'm hoping my thyroid is dragging my t down peakT.   I mean for gods sakes my dads tsh is at 1.4 or something.  Im at a 6.3.  I mean come on.  My friends who is my age also has the same tsh as my dad so that has to be causing issues for me right?

3.0 is the new threshold for TSH and many alternative docs use 2.0.  Very few guys on here have had a TSH as high as yours.

Dr. Saya is my personal doc, though, for TRT and he's great.  Super knowledgeable and thorough.  No hesitation recommending him (or Dr. Crisler).  But one thing I want to disclose:  Defy is a site sponsor.

Thats crazy that you say you haven't seen a tsh as high as mine. Every doc always tells me my thyroid is mildly underactive.  Kinda like its no big deal.  THanks for that eye opener. i'm going to get that taken care of soon with defy. 

Whats crazy is yesterday i was looking over some blood work of this one lady friend asking me advice.   Her TSH level was 0.20   i couldn't believe it. She feels great. This just opens my eyes that my level needs to be corrected asap.


5
Hey Donkey,

Glad to see you back.  Not sure if you remember me, but we messaged a bit during the time that you posted.  Prolactin is a bit high, that should be between 6-8(someone correct me if I am wrong here)

Also - since you have been away, there are a lot of us using defy medical for their treatment.  They really know their stuff and will be able to point you in the right direction a lot quicker than an endo.  Defy wasn't as popular the last time you were posting, but they are really big now.

They should be able to help with the thyroid as well.

Best of luck!
Thanks man.  Yeah i remember all you guys. lol  All of you helped me out alot when i was at my darkest.  Keep me sane and positive.  Yes i will contact with them after i talk to this endo and do my mri.  I will have defy sort out my thyroid as well.


I'm hoping my thyroid is dragging my t down peakT.   I mean for gods sakes my dads tsh is at 1.4 or something.  Im at a 6.3.  I mean come on.  My friends who is my age also has the same tsh as my dad so that has to be causing issues for me right?

6
Hey DonkeyKong - sorry the new isn't better.

Hey, a few things:

--I have told this story before.  One of my sons had a vaccine and the next day he woke up and was completely paralyzed.  He was a toddler and could not move.  His eyes were open and he was looking around but his limbs, body and head were completely immobilized.  I took care from what I remember to make sure that he did not get Thimersol in his vaccine.  My understanding was that single use did not have Thimersol and multiuse did.  So we requested single use.  What caused it?  A weird immunological reaction?  I don't know.  But it was one of the scarier things in my life.  He eventually came out of it about a half day later and seems as healthy as a horse now. 

--Your prolactin is still pretty high which means that your dopamine is likely on the low side.

--You look very hypothyroid.  No one has talked to you about this?  Are you having classic hypothyroid symptoms?  High prolactin and hypothyroidism often go together, so I'm not sure why there is not discussion there:

http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3766941/

"Hyperprolactinemia is the most prevalent endocrine disorder in hypothalamic- pituitary axis (1). Pathologic hyperprolactinemia is generally applied for the situation in which prolactin level increases because of some reasons other than physiologic causes. Prolactin secretion is controlled by prolactin inhibitor factor that is secreted from hypothalamus, other factors like vaso active inhibitory peptide (VIP) and Thyroid relising hormone (TRH) cause to increase prolactin secretion (1). In fact, TRH in addition to increasing TSH causes to rise prolactin level (2). In patients with primary hypothyroidism, increased levels of TRH can cause to rise prolactin levels and these patients may have galactorrhea (3). Different increased level of serum prolactin has been reported in 30% of patients with primary hypothyroidism (4). Subclinical hypothyroidism is defined by high TSH and normal thyroid hormones (5)."

--Your Vitamin D is very low.  Some men, due to digestive or enzyme issues I guess, have to take large amounts.  We've had men on this forum doing that.

Thanks for the response PeakT.  Wow that is a scary story about your son. I'm glad everything is okay now with him. I wish i could go back in time and never get that vaccine. 

 I'm thinking i'm going to take thyroid medication to help my thyroid.  Maybe that will give me a boost.
What about this ACTH level.  it is a bit high. Is it high enough where i should be concerned? Anyone know much about this.

Also maybe i should bite the bullet and get back on this cabergoline medication.  On the plus side my prolactin isn't  going any higher, but it still isn't in the normal range.  So what should i do. Can slightly elevated prolactin cause issues?

Also PeakT do you think my t levels are still on the low side for my age.  I did my test in the morning. 

I also wonder what caused my fsh to skyrocket like it did.  It destroyed my sperm count.

I think i do have hypothyroid symptoms. The slow metabolism. Constipation. fatigue.

Also i plan on getting this mri done for the last time.  If they do find any sign of a small tumor i'm considering surgery to get it removed.
I would rather deal with surgery than pills forever to be honest with you.

7
I haven't posted in a while.  I will give a summary of my situation. Two years ago i was diagnosed with high prolactin of 162. I had symptoms of low energy and no sex drive. They did a mri of pituitary and didn't really see anything. They put me on cabergoline to lower my prolactin and i was on it for a while. My testosterone was also low in the 300 range. I'm in my late twenties so i figured this to be low.  The cabergoline didn't help much. I was on it for 14 months. I was able to regain my erections but the sensitivity wasn't great.  I was not to thrilled about my progress.  I didn't seem the pills were doing much for me.  I still felt tired and carried alot of body fat.  I never had this much body fat in my entire life which is very odd to me.  When i went to the urologists office like a year ago they tested my fsh and told me my testicles were failing due to my high fsh and they couldn't do anything about it.  My lh is in the normal range so go figure.  I was also told i have hashimotos. low vitamin d. and low dhea.   I also have slow bowel movements.  I think my situation was either caused by a tetanus vaccine or antibiotics i took. After i took them i experienced my rapid decline in health two days later. I lost alot of weight mysteriously the next two weeks. My body just shut down and i couldn't eat. I lost around 20 pounds in two weeks. I didn't know what the hell was going on with me so i went to the ER to find out.  They ran some tests and told me i'm fine. For months afterwards my arm was sore were my doctor injected the vaccine.  Doctors told me its not possible and its in my head.   

Fast forward today.  Here is where i stand  i've been off the cabergoline for about 3 maybe 4 months.  I went to a new endocrinologist. She is a nice lady.  I told her my situation and she wanted to run all my pituitary test hormones to see if any other hormones are affected.  She also wants me to do an mri with contrast which i am dreading.  I don't see the relevance in it since the last test they didn't see anything. Maybe so the hospital can make more money?

Here are my test results from like 2 weeks ago.  The test was done early in the morning. Let me know what you guys think. Thanks.

ACTH   62 pg/mL          6 - 50 pg/mL

CORTISOL   17.4 UG/DL   2.9 - 19.4 UG/DL

FREE T4   1.1 NG/DL         0.8 - 1.7 NG/DL

TSH   6.13 UU/ML                 0.40 - 4.60 UU/ML

PROLACTIN   23 NG/ML         2 - 18 NG/ML

TESTOSTERONE, TOTAL   483 ng/dL   250 - 1100 ng/dL

FREE TESTOSTERONE   108.2 pg/mL   35.0 - 155.0 pg/mL

FSH   20.2 MIU/ML        13-70 YEARS: 1-15 MIU/ML

LUTEINIZING HORMONE   5.4 MIU/ML      AGES 21-70: 2.0-6.0 MIU/ML

VITAMIN D, 25-HYDROXY   20 NG/ML   30 - 80 NG/ML

IGF-1   205 ng/mL   53 - 331 ng/mL

Do you guys think the acth hormone is high enough to give me problems?  Can the elevated prolactin still be causing me issues? I know its not super high.  I read an article that says high prolactin leads to obesity.  I still have crap energy.  My libido is not great. I am able to get erections and have intercourse. My sensitivity is not good.  My endo says my testosterone is fine.  I don't think it is for someone my age.  I asked if i should go back on the cabergoline and she said she will decide after my mri.   So yeah thats where i stand.  I mean i don't feel like complete crap which is a plus, but i don't feel 100 percent optimal.   Like my body is being held back.  I'm just wondering which is the right step. i'm taking vitamin d daily.  Should i be taking pills for my thyroid? My dads tsh and my friend checked thiers and it is at 1.7.  Mine is really sluggish compared to theirs.  Is that contributing as well?

Any suggestions will be appreciated. Thanks guys.



8
What exactly is the protocol?

Take 350 ml hcg daily then clomid restart. Thats all i know at this point

9
Hey guys i haven't posted on here for  a while just thought i would get your opinion on my situation and let you know how i'm doing.

So i talked to Dr. Saya a month ago from defy and he put me on 350ml of hcg for a month then plans on doing a clomid restart. The month is almost up and i wanted to know how you guys feel about this.

I don't notice much from the hcg. I still feel basically the same. My testicles don't seem to be any bigger. Maybe just very slightly.  Dr. Saya will also treat my hashimoto's and have me do bloodwork and will determine the best course of action once i consult with him in a couple of days.

Does anyone know how the clomid restart would work? How long i would have to be on it? Also does hcg lower lh and fsh in your body? does anyone know this?

All in all Dr. Saya seemed very nice and answered all of my questions. He also put me on 40 mg of dhea daily since mine were low.

Thanks alot guys

10
Quote
I'm waiting at the eye docs office right now.

What was the outcome?

So he said that there is no tear or bleeding so I should be fine. He doesn't know why I have the eye floater.

I didn't go to the e.r. yet.  I feel like shit today as well and completely exhausted. My head feels weird like its being squeezed on certain spots. I really don't know what's going on.  Certain spots of my head feel kinda numb. I completely lost my appetite the past couple of days. My desire to do stuff has went way down. Maybe the prolactin is messing with my dopamine.

I'm debating if I should go to the er or not. I will decide in a lil bit and let you guys know.

Thanks

11
Quote

Also what high prolactin does is lower dopamine levels.  I lost all interests in my hobbies with high prolactin.  It also got to the point where I could not get an erection even if my life depended on it.  So be cautious.  I wonder if maybe a better solution would be to just remove the growth through surgery and not deal with the medicine crap our whole lives.  What does of caber did they prescribe you and how often. Mine was twice a week at .25 mg.

How's your sex drive? Did caber help you out with that?  For me it did initially. After my first pill it gave me crazy non stop erections and wet dreams.  That lasted for 8 days then I crashed.  Probably too much for my brain to handle.

Also maybe you needed a stronger dose to lower your levels even more?

I took once a week(half of it monday, the other half on friday) 0,5 mg.

My sex drive changes depends on my mood. I don't believe caber plays a role in it.

I don't think there is such a thing as mood anymore. I think mood is all hormone driven.

When I took my first pill of cabergoline, I swear to god I felt the effects within hours. Before that point I was not able to get an erection for weeks. No way in hell.  Then after taking the first pill I had spontaneous erections.  I'm cured I thought. I also had sex dreams the first couple of days and I was on top of the world.  That lasted for 8 days then I don't know wtf happened. I crashed my erections and libido disappeared completely. Maybe too much dopamine at once desensitized my receptors. Maybe my sex drive was not able to be sustained due to my low t.

It took like a month and a half to two months until my erections came back.  It was a nightmare. Luckily my gf was supportive and waited it out with me.

12
I'm waiting at the eye docs office right now. They squeezed me in because I said it's an emergency. I will keep you guys updated on what he tells me when I'm done.

My headaches have returned today again with a vengeance.  When my gf gets outta school she's taking me to the emergency room so I can get checked out. Thanks for the help.

Is it so much to ask to just be normal and not have any problems for once?

13
I had testicular cancer and was missdiagnosed for 7months..

I knew i had cancer as i was certain that it was a tumor, doctors even with pictures of it turned it away and said i was fine. I continued my life and throughout months I developed different symptoms related to the cancer in my belief.

4months = withnessed eyefloaters
5months = tinnitus
6months = bloodpressure 170-180 systolic "stress related" ???
7months = weakness, brainfog, tiredness, no concentration, worse tinnitus and worse eyefloaters.
Got diagnosed - operated - Bepx3 chemo "wich did help alittle with my tinnitus/eyefloaters" eventually what helped the most was actually starting to juice "fruits" massive amounts of beetroot, carrots, ginger, ect.

I went 6-7months after treatment with low T. My new hair started to fall off, i was tired, i lost muscle, and appreance, dident feel confident ect! Started TRT and tinnitus/brainfog/eyefloaters/tiredness all went away to some degree.

so ok... I believe that the eyefloaters could just be related to high cortisol wich drives your adrenalin and your attention towards yourself. You know you have a disease, so you might be looking for other signs! You cought a floater, but now you are aware of it... My less degree of it could be just that ive started not to see them, but they are still there...

Redo-bloods - eye test and mr scan.

My mr scan came out clear...
and btw, why did you get the tumor? and are you on TRT due to it or what.

They suspected a tumor due to the high prolactin. They did an mri scan. In my home state the docs couldn't see a pituitary tumor. I flew out to the mayo clinic and there docs suspected they saw a small pituitary tumor. Nothing conclusive.  I was on caber for over a year.  I decided to stop and have been off of it for a month and a half. When I check it after a month and a half my prolactin level was at 17. A little over the normal range.

I been getting these back of the head headaches for over a week now. I'm starting to wonder if my pituitary tumor is bleeding in itself. From what I read that might be causing my headaches.

I'm starting to think that maybe the docs were so focused on my pituitary that maybe somewhere else in my brain could have been the problem.

I just started hcg for the past 2 days.

Wow that's crazy how they did not see the cancer? How is that possible? Are your eye floaters any better?

I have also lost my appetite the last couple of days. I'm going straight tomorrow morning to an optamalogist.

Who should I go to to request a brain scan? My primary doc? If I go to an endo it might be days before they will scan me. 

I'm thinking since I have free health insurance that maybe I should go straight to the emergency room. That way they would scan me on the spot.

What do you guys think?  I mean headaches shouldn't last this long right and not in the back of the head.

Go to the ER. You'll put your mind at ease.

Yes I'll go tomorrow. My gf will take me there. I will go to hospital in the downtown of my city. They should me more advanced I hope.  Yeah easing my mind will help a lot. I really hope the tumor didn't bleed or leak. Tomorrow will be a big day for me.

I'm debating if I should take some cabergoline tonight. Will it help or make it worse?

14
I had testicular cancer and was missdiagnosed for 7months..

I knew i had cancer as i was certain that it was a tumor, doctors even with pictures of it turned it away and said i was fine. I continued my life and throughout months I developed different symptoms related to the cancer in my belief.

4months = withnessed eyefloaters
5months = tinnitus
6months = bloodpressure 170-180 systolic "stress related" ???
7months = weakness, brainfog, tiredness, no concentration, worse tinnitus and worse eyefloaters.
Got diagnosed - operated - Bepx3 chemo "wich did help alittle with my tinnitus/eyefloaters" eventually what helped the most was actually starting to juice "fruits" massive amounts of beetroot, carrots, ginger, ect.

I went 6-7months after treatment with low T. My new hair started to fall off, i was tired, i lost muscle, and appreance, dident feel confident ect! Started TRT and tinnitus/brainfog/eyefloaters/tiredness all went away to some degree.

so ok... I believe that the eyefloaters could just be related to high cortisol wich drives your adrenalin and your attention towards yourself. You know you have a disease, so you might be looking for other signs! You cought a floater, but now you are aware of it... My less degree of it could be just that ive started not to see them, but they are still there...

Redo-bloods - eye test and mr scan.

My mr scan came out clear...
and btw, why did you get the tumor? and are you on TRT due to it or what.

They suspected a tumor due to the high prolactin. They did an mri scan. In my home state the docs couldn't see a pituitary tumor. I flew out to the mayo clinic and there docs suspected they saw a small pituitary tumor. Nothing conclusive.  I was on caber for over a year.  I decided to stop and have been off of it for a month and a half. When I check it after a month and a half my prolactin level was at 17. A little over the normal range.

I been getting these back of the head headaches for over a week now. I'm starting to wonder if my pituitary tumor is bleeding in itself. From what I read that might be causing my headaches.

I'm starting to think that maybe the docs were so focused on my pituitary that maybe somewhere else in my brain could have been the problem.

I just started hcg for the past 2 days.

Wow that's crazy how they did not see the cancer? How is that possible? Are your eye floaters any better?

I have also lost my appetite the last couple of days. I'm going straight tomorrow morning to an optamalogist.

Who should I go to to request a brain scan? My primary doc? If I go to an endo it might be days before they will scan me. 

I'm thinking since I have free health insurance that maybe I should go straight to the emergency room. That way they would scan me on the spot.

What do you guys think?  I mean headaches shouldn't last this long right and not in the back of the head.

15
Are you on any medication at the moment?

Go to the doctor/hospital and get checked out. Better to play safe with these things.

Right no no not on any meds.  I will go to an eye doc on Monday and get scanned on Monday as well.  I will demand it.

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