Ok been of testosterone 5 months and having health issues with my wife, so I am on here very little. But a quick update
For the first time in my life I am slightly chubby. How much of this is coming off the testosterone I am not sure. But at 46 I am fatter than ever. Although that is about 10 pounds over weight for me. i was always a skinny runt. Some of that is stress I am sure. My wife was found to have a brain tumor that seems to be stable at this time. (no growth in 3 month). They do not believe it is malignant, but too deep for biopsy. Therefore I can not comment on sex life after stopping testosterone.
*** to understand the rest of my post, about 7% of people presenting with DVT and Pulmonary Embolisms have un-diagnosed cancer , unless they have a provable cause, bed bound, accident, surgery and a little ore controversial hormone replacement***
I have definitely lost strength, but my endurance is back up for the bike, but I am not on it nearly as much as before. I have completed most of the blood tests for Dr Glueck, about 3 more that I will have to pay for. The vast majority I do not know the result and have asked not to be told yet. If you do not know I suffer from health anxiety and if all the test were negative I would stress more about cancer being a cause. Being rational does not work with anxiety
. That said, I think the research is important and got kaiser to pay for most of the clotting tests. They have huge disagreement over a couple of the tests and the Kaiser hematologist said there are even some rare ones Dr Glueck is not testing for, so his test is not conclusive 100%.
As far as testing for cancer , Kaiser has run me through a complete screening , including 4 biopies that would not have been touched if not for the clot. Still waiting on 3 biopsies, but everything else has come out clean. Had a 5 month abdominal MRI and it was time for my colonoscopy anyway and they were fine. I have had at least a dozen scans, only one had radiation
Working with cancer for 20 years, I know that the risk of cancer discovery is substantial for about 2 years if not related to my hormones, but that risk is probably down to 1/4 of the original risk now. Most are found in a few months. In a few months I will report if I was positive for any of the blood clotting tests from Dr Glueck. As far as going back on testosterone I am torn. It will definatelty be at a low dose though. I am pretty sure pending blood test results that my high estradiol was one main cause of my DVT/PE and Dr Glueck agrees. The hematologist also stated that my bike riding out in the heat and the fact i do not really drink on long rides is highly suspect to him, followed by a 7 hour car ride on testosterone.
So, do I think I have cancer, not hardly at all. Ain't anxiety a pain in the butt. I just can not shake that fear. Seen too many people present with a clot and we find cancer. My wifes tumor appears metabolic, meaning something is off causing a change in mylenation. She just does not have the classic causes and it is not shrinking as they thought it would, but at least it is stable. That pretty much rules out high grade gliomas ( the fast dying kind) So, that is good news.